Alice Wong - "Resisting Ableism: Disabled People and Human Gene Editing"


Publication/Creation Date
November 1 2017
Creators/Contributors
Alice Wong (creator)
Rebecca Cokley (contributor)
Anita Cameron (contributor)
Media Type
Video Lecture
Persuasive Intent
Information
Description
Alice Wong is a disability rights activist and the creator of the Disability Visibility Project™ (DVP), "a community partnership with StoryCorps and an online community dedicated to recording, amplifying, and sharing disability stories and culture created in 2014".

In this talk for Stanford Medicine X, Wong speaks about topics that "are rooted in the lived experience of disability that's personal, political, and current." Using her own story as well as those of other disabled activists such as Anita Cameron and Rebecca Cokley, Wong explores on the intersections of disability, ableism, healthcare, and technology. The medical system currently equates health and wellbeing with "the absence of illness and disability" and therefore, disabled people are assumed to to have a life that only full of pain and suffering, rather than joy and agency. This presence of pain and suffering is then equated with a life not worth living due to a percieved "loss of control, weakness, and fragility". 

These ableist cultural assumptions are also embedded in discussions surrounding genetic engineering. Wong states that, "gene editing is the elimination of certain genetic conditions, that is, actual disabled people", and that we should all be engaged in discussions about the social and ethical implications of this technology on the future of humanity and diversity.
HCI Platform
Other
Location on Body
Entire Body
Marketing Keywords
Stanford Medicine X
Source
https://www.youtube.com/watch?v=_vdeeR5DOSo

Date archived
October 8 2018
Last edited
October 28 2018
How to cite this entry
Alice Wong. (November 1 2017). "Alice Wong - "Resisting Ableism: Disabled People and Human Gene Editing"". Stanford Medicine, Stanford University. Fabric of Digital Life. https://fabricofdigitallife.com/index.php/Detail/objects/3288